“Are you alright Alisha?” I heard the voice in the distance ask.
After what seemed like a long few seconds I was able to lift my bopping head and respond.
“I am ok thanks, I just need to let it pass, it will pass” I said. Really trying to reassure myself.
Fibromyalgia was doing it again.
I had been sitting at my desk plugging away at the work when my body started shutting down.
My manager was sitting next to me at work when she saw me slump forward.
Knocked out by fibromyalgia
I hate this bloody illness.
This has happened at the most unfortunate and embarrassing times. (I will share the stories another time).
The chronic fatigue associated with fibromyalgia is extreme. It is debilitating. The kind of debilitating that makes it impossible for many of us to work and complete what we might all consider basic, everyday tasks like showering, changing, cooking and socialising. Basic parts of human life.
Bloody, freaking fibromyalgia.
I am fortunate to have had some of the most understanding managers in my work life.
“I found myself looking through your blog with great interest” my boss had said to me earlier in the day.
That moved me incredibly. Because I know what it is like to live with an invisible disability. People with invisible illnesses are often judged harshly.
“Lazy” is a word used to describe many of my fellow fibromites. It is hurtful.
People simply have NO idea.
No idea what it is like to be in the middle of a task one is determined to finish with excellence, to the best of one’s limited ability, only to have one’s body shout “No you are going to stop, shut down NOW regardless of where you are, who you are with or what you’re doing.”
Good Lord, what a day.
I pray for patience and determination to push forward in the face of this invisible, all consuming monster that is fibromyalgia.
With love and empathy,