When you live with fibromyalgia some days are harder than others.
I find that it’s been getting harder as I get older. Harder to get out of bed, cope with the pain, and exhaustion among other symptoms, harder to do little things like comb my hair or have a bath without getting terribly exhausted.
It’s not easy either to be social when you feel like this. So I’ve reverted to being my old self – a complete hermit.
To say that life with fibromyalgia is frustrating is an understatement. And it can really make one depressed if one isn’t already dealing with that. Fibromyalgia has completely changed my life, and changed ME as a person.
It does that to you.
So how does one get by feeling like this day in, day out? I go through life one day at a time. Literally. And then I go through each day hour by hour. It might sound sad but that’s just how some of us have to do it.
Some fibromites or fibromyalgia sufferers get by and keep their moods up via creating routines. This won’t work for all of us, and there’s no one solution; but I think it’s important to find ways of getting by with fm, especially since most of us don’t keep very busy as we don’t all work (because many of us can’t.)
It’s easy to start feeling like you want to throw in the towel.
I always feel like my life is practically over before it’s begun, and it’s easy to feel like that when something as simple as having a conversation could get you so worn out.
But I’ve found that having something to look forward to really helps me. For me it’s the process of writing, hoping one day I might get published.
Maybe for you it might be a project of sorts? Getting involved with a charity close to you heart? helping others? I hope in the near future to start working with a parrot sanctuary for instance, and being able to help others who suffer from depression.
That’s what matters to me, and you should find something that matters to you.
Living with fibromyalgia can often make life feel pointless.
So many of us have to find, or realise the things that give our individual lives meaning. Find that, whatever it is, or do something worthwhile that means something to you and work on that.
I’m not saying it will be easy, even writing is challenging for me with the cognitive difficulties fm presents, but we all have to try.
Things have to get better for us in future, we just have to find ways of getting by until then.
Let me know how you get by.
Gentle hugs 🙂