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Photo by  Mnxan Opena

Photo by Mnxan Opena

It’s 3:35 AM and I am finding it hard to quiet my mind.

I was going to write about something completely different but then I thought of something I’d like your feedback on.

I am playing around with the idea of producing a ‘radio documentary’ to raise awareness of fibromyalgia. It would be great to ultimately get it on air but at the moment I’m simply thinking of posting it online, here on my blog and Youtube. I think it might be a good source of information and encouragement for those of us living with this debilitating condition. View full article »

Waiting to Fly


Photo by FireflyFlyAway

Photo by FireflyFlyAway

I was listening to Lana Del Rey’s I Can Fly, and it elicited something in me.

She sings ‘You had me caged up like a bird in the summer….I was waiting to fly…’

I imagined the ‘You’ in her song as the depression and complex PTSD stifling me, tying my wings back.

I am not crazy. I am not sick. I am just a caged bird waiting to fly.

I am ready, but… View full article »


Picture1

“Are you alright Alisha?” I heard the voice in the distance ask.

After what seemed like a long few seconds I was able to lift my bopping head and respond.

“I am ok thanks, I just need to let it pass, it will pass” I said. Really trying to reassure myself.

Fibromyalgia was doing it again.

I had been sitting at my desk plugging away at the work when my body started shutting down.

My manager was sitting next to me at work when she saw me slump forward.

Knocked out by fibromyalgia

I hate this bloody illness.

This has happened at the most unfortunate and embarrassing times. (I will share the stories another time).

The chronic fatigue associated with fibromyalgia is extreme. It is debilitating. The kind of debilitating that makes it impossible for many of us to work and complete what we might all consider basic, everyday tasks like showering, changing, cooking and socialising. Basic parts of human life.

Bloody, freaking fibromyalgia.

Sighs.

I am fortunate to have had some of the most understanding managers in my work life.

“I found myself looking through your blog with great interest” my boss had said to me earlier in the day.

That moved me incredibly. Because I know what it is like to live with an invisible disability. People with invisible illnesses are often judged harshly.

“Lazy” is a word used to describe many of my fellow fibromites. It is hurtful.

People simply have NO idea.

No idea what it is like to be in the middle of a task one is determined to finish with excellence, to the best of one’s limited ability, only to have one’s body shout “No you are going to stop, shut down NOW regardless of where you are, who you are with or what you’re doing.”

Good Lord, what a day.

I pray for patience and determination to push forward in the face of this invisible, all consuming monster that is fibromyalgia.

Be strong.

With love and empathy,

Gentle hugs:)


surviving

Hiya,

How have you been?

I’m sorry I’ve been a bit scarce lately. Fibromyalgia has been beating the crap out of my body. That, mental exhaustion, low mood and the world’s poo has been too much to manage.

I’ll be posting again soon (when I’m out of survival mode)

Remember to take your vitamins, eat fresh (no processed stuff) and avoid intellectually challenged people (aka idiots sent to test us).

Gentle hugs:) x

2014 in review


The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog.

Here’s an excerpt:

The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 9,000 times in 2014. If it were a concert at Sydney Opera House, it would take about 3 sold-out performances for that many people to see it.

Click here to see the complete report.

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